There is no known cure for my condition, but I'm very lucky because there is treatment available. In my case I have high-dose intravenous immunogloblin (IvIg) therapy for four days every eight weeks, my doctors tell me that this treatment is a type of chemotherapy. It certainly feels like a kind of chemotherapy, and keeps me off my bicycle for a couple of weeks while I recover. 
I have chosen to support Action Medical Research, not only because they carry out research into several conditions and diseases that are very closely related to mine, namely Motor Neurone Disease and Guillain-Barré Syndrome - but also because they fund research into lots of other different diseases and get results. In July 2005 I cycled a gruelling 300 miles over 4 days from London to Paris with Action Medical Research, and I raised £2,739 to help Action Medical Research fund more research programmes, hopefully they will one Because of my treatment regime I was unable to ride the London to Paris event in 2006, however, on 7th May I rode the 100 mile Castle Ride around a number of castles in Kent and raised another £200 for Action Medical Research. I also managed to persuade a work colleague to go with me, and he raised well over £300 too. You may think that Kent is fairly flat, well I can tell you it's not. There are no great peaks, but the roadbuilders who made the roads we rode didn't believe in going around hills, no matter how steep they were, the just went straight over them. On 27th August 2006 I rode the Action 100 which was my main event last year, another century ride from Bristol to London. Since the official finish wasn't actually in London, but in Chobham (Surrey) I cycled from the finish to Euston station, which worked out to be another 34 miles because of a detour around Notting Hill Carnival. My total distance for the day turned out to be 143.6 miles. If you are a company and you want to sponsor me by placing your logo, web address and phone number on my clothing email for more details about advertising opportunities. What's Next? Unfortunately it's not going to be possible for me to ride L'Eroica this year, but I will be running the London Marathon, and riding the Action 100 again. |
Event Calendar 2004 2005 2006 2007 2008 Lands End to John O'Groats < Next Event
2009 2010 Grant's Philosophy Life is for living, and when my time is up my body will be completely worn out. To me there is no point in doing nothing, saving yourself for your old age in the hope that you may prolong your life, what an incredibly dull life that would be. I have a need to experience as much as possible as soon as I can. What a waste it would be if I waited until I was 65 and retired to start living my life, only to get knocked down by a bus or hit by a meteorite. I push myself mentally and physically as hard as I can, sometimes at the same time. I consider it to be very selfish to do events like these, if you are only doing it for yourself. In an ideal world, every challenge I do would be raising money for some charity or other. I don't think it's fair to keep asking the same private individuals to sponsor me over and over again. Major sports equipment and clothing manufacturers would benefit from sponsoring someone like me, an ordinary (well relatively) member of the public, to do these extraordinary challenges and give that money to charity. |
All revenue generated from advertising in this space goes to Action Medical Research Linked button adverts (per event): These adverts are seen by around 1000 different visitors each month.
Action Medical Research is the UK’s most forward thinking charity. We believe diseases and disabilities can be beaten, and through medical research we are creating a healthier future for everyone. Our work is driven by medical need, and not influenced by politics or swayed by the pressure to be profitable, which means we are free to fund only the best science. Since 1952, when our first research funding paved the way for the ‘sugar cube’ vaccine in the UK which crippled polio, we have been involved in a remarkable breadth of groundbreaking work. |
Hi, I'm Grant. I'm 38 and I have a condition called Multi-Focal Motor Neuropathy with Conduction Block, It is a degernative disease that destroys the myelin sheath around the motor neurons and currently stops the muscles in my hands from working properly. Basically my brain sends a signal, but it never gets to my fingers because the wiring has been damaged.
day provide the funding for whoever finds a cure for Multi-Focal Motor Neuropathy. They have had some other major successes in the past, you may of heard of them - or even benefited - polio vaccine, ultrasound scanning in pregnancy and the hip replacement operation to name just a few.
